The Double Helix Data Problem: Who Really Owns Your Genetic Information After You Spit in That Tube
Tens of millions of Americans have voluntarily submitted their most intimate biological data to direct-to-consumer DNA testing companies in exchange for ancestry maps and health insights. What most of them did not read — buried deep in terms-of-service agreements — is a complex web of data-sharing arrangements, law enforcement access provisions, and third-party licensing deals that transforms their genetic profile into a tradeable commodity. The implications extend far beyond genealogy.